Endocrine Neoplasia MEN 1& 2, Succinate Dehydrogenase (SDH) B & D

This condition is treated in the Endocrinology clinic.

Pre-referral work-up

History

The clinic specifically caters for patients with Multiple Endocrine Neoplasia type 1 (MEN 1), mutations of Succinate Dehydrogenase gene B and D, Paraganglioma syndromes and non-thyroid endocrine malignancies. It also undertakes investigation, management and long-term follow-up of sporadic and familial endocrine neoplasms including pre-operative investigation, post-operative planning for radioiodine therapy and hormone replacement.

Referrals accepted from state-wide, long-term follow-up will undertaken in patient's home region.

All referrals should comply to the referral standards and also include:

• Family history of condition
• Onset of symptoms
• Past and current investigations and treatments

Tests

• U&E Cr, eGFr, LFTs
• Ca^2+, Mg²⁺, PO₄^2-

Interim/GP management

To refer a patient with this condition, please see the Endocrinology clinic page for the full referral process and templates.

These are complex conditions and usually require consultant opinion prior to initiating complex investigations.

For more information please see the HealthPathways Tasmania website.

Clinic appointments

🚩 Red location flags are clinical indicators of possible serious underlying conditions requiring further medical intervention. They may or may not indicate an emergency.

Emergency

🚩 Pheochromocytoma

If you, or someone else, are experiencing a serious and life-threatening injury or illness call triple zero (000) immediately or go to the nearest Emergency Department.

Learn more about when to access emergency care and non-emergency care options if the injury or illness is not serious or life-threatening.

Urgent (Category 1)

🚩 Insulinoma
🚩 Pituitary tumour
🚩 Gastrinoma
🚩 Cushings syndrome
🚩 Acromegaly  
🚩 Hypercalcaemia (CCa ²⁺ over 3.0 mmol/L, ICa ²⁺ over 1.5 mmol/L)

Urgent referrals should be accompanied by a phone call to the Consultant/Registrar to organise urgent review.

We will endeavour to see these patients within four weeks, or sooner if clinically indicated.

Semi-urgent (Category 2)

Screening and routine follow-up

Availability

North

John Morris Diabetes Centre
Northern Integrated Care Centre

Phone: 6777 4145
Fax: 6777 5247

North West

North West Regional Hospital
Phone: 6493 6300
Fax: 6464 1928

Mersey Community Hospital
Phone: 1800 636 455
Fax: 6441 5928

Diabetes Centre
North West Regional Hospital
Phone: 6493 6100
Fax: 6431 8061

Diabetes Clinic
Devonport Community Health Centre
Phone: 6493 6100
Fax: 6441 5946

Paediatric
North West Regional Hospital
Phone: 6493 6300
Fax: 6464 1928

South

Wellington Clinics
Phone: 03 6166 0000
Fax: 03 6234 3982